If you are a Facebook friend of mine then you know that both Addy and Little Man were admitted to the hospital last night. If you aren't a FB friend of mine then read on so you know the whole story :)
Saturday Little Man started wheezing. This is pretty common with him so I went ahead and started his neb treatments. He didn't sleep well Friday night and had a horrible night on Saturday. That usually means an ear infection but I just wasn't sure. Sunday was a nightmare he was sooo fussy, coughing and had a fever of 101-102 all darn day. Scott had to work so I didn't want to head into Urgent Care since I would have to take Addy and she was still having to have treatments for her cough and yucky pneumonia. She seemed to be about the same if not worse. Well Sunday night Little Man started retracting while he was breathing. I debating taking him to the ER because I really wanted to see our doc. No one knows my kids as well as she does. But he was definitely getting worse so into Springfield we went. We were actually in and out pretty quickly. His pulse ox was 89 when we first got into a room. He then went up to about 95 pretty quickly. He had a chest x-ray and they did a neb tx with O2. He was still retracting some but the doc checked him over (very quickly mind you) and said that he had Bronchiolitis and just to continue our home neb routine and follow up with our doc on Monday. I asked about his ears and he said they were fine. However, anyone that has a child with DS KNOWS that they have tiny ear canals and a quick peek isn't going to do tell you a thing. So we came on home and I fell into bed around 3.
Monday I kept Addy home from school because she was definitely worse and Little Man wasn't improving. I could not get his temp under 101 until about 1pm. We had an appointment with the doctor at 3. I already had a bag packed, just in case! Well Dr. Roe checked Addy out first. Pulse ox was 95 but she sounded absolutely awful. She got a neb treatment and was swabbed for the winter virus panel. After seeing how she was after her treatment Dr. Roe asked what I would think if she told me Addy needed to be admitted to see why in the world she has had the pneumonia pretty much since October. I told her if she felt she needed to go in then I wanted her to be admitted, bag was in the car. Unfortunately our pulmonologist is out of the country but she went ahead and ordered an overnight pulse oximetry and wanted the speech pathologist to see her to see if she thought she was aspriating her saliva or what. So okay, Addy was going in.
Little Man was next. He was really retracting :( his pulse ox was 95 as well. He also had a neb treatment, temp was back to 101, and was swabbed for winter viruses as well. He had TWO ear infections as well! HAH! I KNEW it! After his neb treatment he was still holding at 95 but his respiration rate was through the roof. So once again we get admitting papers :( My poor sweet babies.
Update to now without getting into everything...
Little Man has RSV, double ear infections, pneumonia (yes diagnosed from the same darn x-ray!!!), and he is on 1 liter of O2 because his sats were continually dropping under 90. We tried to go down to 1/2 liter this afteroon but it didn't work, especially when he fell asleep. He is still retracting some but not near as bad. His respiration rate is still fast but not as bad as it was. He was treated every two hours with Hypertonic Saline with Albuterol neb treatments. He has had a fever continually of 102/101 :(
Addy does NOT have RSV, does still have double pneumonia, did not have a fever until tonight when it was 101.3, she's on two IV antiobiotics, is being treated with Hypertonic Saline/Albuterol every two hours and CPT every 4. She had a speech eval today and ate her favorite mangoes pretty well considering she feels like poo. The SLP felt that if she did a Modified Barium Swallow that Addy would not eat enough to really show anything. Addy shows NO SIGN of aspirating her food that she eats (which is extremely minimal) or drinks. She truly feels that she is aspirating reflux. She discussed a test they may do which I cannot remember the name of it for the life of me that there will be a NG tube placed down Addy's nose into her stomach that will measure how often she reluxes in 24 hours. I'm not sure if the doc is going to go ahead and order that test or not. Addy does NOT have a Nissen fundoplication so she can vomit and she does have pretty significant reflux. If that test is ordered I hope it's not tomorrow, Scott is staying the day tomorrow so I can go to work. Addy isn't on O2 but did have to be put on a mask while she slept today and they went ahead and put it on her tonight once she went to sleep. She dropped her sats even after several repositionings this afternoon :(
So right now it's hard. But it happens, kids get sick. Especially our little ones with compromised immune systems. I stayed home on Monday and stayed in the hospital today. Scott spent the night last night and is staying again tonight and tomorrow. I have got to get to work to make sure I'm caught up on IEPs and testing and such, I also have some darlings to see for therapy as well. Scott has to be at work on Thursday so after work tomorrow I will head in to relieve him so he can get a full nights sleep and spend some time with Cooper and Jake. We are both exhausted but it could be so much worse. The kids are going to be okay, they are sick but they are not in intensive care or critical, they are just sick. I honestly believe it doesn't help that it's been 70 degrees the past two days and tomorrow it's going to be 33 degrees and snowing!
Please pray for my little angels and for my amazing husband that so easily gives up sleep so I can be home with the boys and sleep in my own bed.